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February 03

♥ Riley’s 20th Cardiac Cath is Scheduled ♥
Hard to Believe I am typing this again already, but Riley’s Next cath has been scheduled!!!! February 20th ♥ Im a little more concerned this time around because the reaction is getting worse with each cath. There is No alternative though! Dr. Hanna has ordered his first dose of steroids post cath to be given [...]

8:34 PM GMT  |  Read comments(0)

February 02

Riley Wearing His Red ♥


11:19 PM GMT  |  Read comments(0)

January 30

Riley’s Visit with Dr. Hanna…
Riley had a visit with Dr. Hanna today. We are looking at cath number 20 being scheduled for either the week of February 13th or the week of the 20th. Time is just Flying by. I know mid February is a lil ways off, but it seems like we just cathed him. Well probably cause [...]

9:30 PM GMT  |  Read comments(0)

January 27

Riley Loves His Big Brother.. ♥
Riley is Literally Christian’s Little Shadow:)

9:42 PM GMT  |  Read comments(0)

January 24

Our Reality ♥
I just wanted to share something that happened today ♥ A friend stopped by with one of their friends. My friend’s friend said.. Oh I can see Riley was coloring today! I thought No.. Then My friend jumps in and says… No that’s not marker on Riley’s fingers… They Always look like that! Then I [...]

8:42 PM GMT  |  Read comments(0)

January 22

What a Mess….
Seems Riley undid his extension while I went to get his meds. At Least I’m assuming thats when he did it. Needless to say…about 150 ml of feed plus 5 meds literally down my chair. Called CHOP and he is ok to wait till his next dose tomorrow of those meds especially since we don’t [...]

3:40 PM GMT  |  Read comments(1)

January 20

Riley Wearing his Shirt on his Head…Being Silly:)


10:00 PM GMT  |  Read comments(0)

Visit With Dr. Kreindler and a Moment in Our Reality….
Riley had an appt in pulmonary today. Nothing much to report on as far as Riley and/or any changes. I did want to share just a lil something with you all though. When I was talking to Dr. Kreindler I said how Crazy this whole thing is. Riley needs transplant in order for there to [...]

9:58 PM GMT  |  Read comments(3)

January 10

Couple of Pictures from Riley’s Cath Day…
Riley and Kathy… Getting ready for the IV. Mommy suiting up to take Riley into his Cath. Mommy and Dr Jobes.. Sleeping after the cath. During the reaction.

9:47 PM GMT  |  Read comments(0)

A Thought I’d Share…
Yesterday…while at CHOP we saw some of the people on “Our Team”. After the cath I was talking to some of our team and mentioned how crazy it was putting Riley through this every 8 weeks and even crazier that he has been waiting over two years for transplant. One of our team members said [...]

8:58 PM GMT  |  Read comments(2)